INSUBCONTINENT EXCLUSIVE:
saying.The National Document on Rare Diseases was approved in 2020 to prevent the birth of infants with rare diseases and remove medical and
therapeutic problems.According to the Ministry of Health, there are 500 SMA patients are living in the country, for them, the FDA pays 4
trillion rials (about $13 million) annually to cover their treatment costs.The National Document on Rare Diseases has been approved in
December 2020, with the aim of preventing the birth of infants with rare diseases and removing medical and therapeutic problems.The Majlis
(Iranian Parliament) has approved a total of 50 trillion rials (about $156m) for the treatment of patients with rare diseases, Health
Minister Bahram Einollahi has said.A total of 250 trillion rials (around $943 million) has been proposed in the budget bill for the current
year (started on March 21) to support and treat patients with rare diseases.For the first time in the budget bill, a fund has been set up to
support patients with such diseases, Hamidreza Haji Babaei, chairman of the planning and budget committee of the parliament (Majlis), said
in February.United States sanctions have directly impacted the lives of Iran's most vulnerable citizens, including women, children, and
patients.In May 2018, the United States began to unilaterally impose sanctions against Iran after the former left the Iran agreement,
officially called the Joint Comprehensive Plan of Action (JCPOA).The sanctions, preserved under the Joe Biden administration, have
restricted the financial channels necessary to pay for basic goods and medicine, undermining supply chains by limiting the number of
suppliers willing to facilitate sales of humanitarian goods to the country.Iran has repeatedly denounced the sanctions as an act of
